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55 Kenosia Avenue Rare Disease Day is Feb. 28th. Patients, family members, and caregivers may contact GARD by phone or our contact form. Qualifying families can receive travel assistance for the child patient and up to two parents or legal guardians. We currently manage more than 80 disease programs, each of which covers all FDA-approved treatment for the disease named in the program. Learn about NORDs full breadth of programs. Our Information Specialists provide personalized responses that are easy to understand, free of charge, and confidential. Provides similar services as GARD only they will know more about the resources and medical specialists available in Canada. Suite 500 The National Organization for Rare Disorders (NORD) is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service. The Rare Disease Educational Support Program reimburses registration costs for rare disease-specific educational offerings such as workshops, nutrition classes, and conferences, as well as limited financial assistance for travel and lodging costs. Orlando, FL 32839, 655 15th St. NW Vision Care Financial Assistance Information - Prevent Blindness Contact your state's Department of Human Services for assistance with applying for financial help. We help people who are undiagnosed and searching for a medical diagnosis. Stay Informed With NORDs Email Newsletter. Program provides copay assistance for medications to individuals diagnosed with hemophilia or a rare bleeding disorder. Programs vary from state to state. Phone: 202-588-5700. However, we can't guarantee the accuracy or completeness of the information. You may call +98 (21) 66572937 or visit their website for assistance. How NORD Can Help - Resources, Financial Support, & More | NORD You can make a difference. Compassion flights are considered on a case-by-case basis. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. Financial Assistance for Chronic Illness: Five Resources - GoFundMe Learn about TAF's impact and read our financial reports. Phone: 617-249-7300, Danbury, CT office Provides similar services as GARD only they will know more about the resources and medical specialists available in Iran. To learn more, visit. The Assistance Fund is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. NORD Offering Financial Aid to Rare Disease Families Hurt by COVID-19